Blog

 
sarah alcock sarah alcock

“I’m an Adult, Not a Child”: Supporting Autonomy in Adult Disability Support

Adults with disability are first and foremost adults. Yet all too often, they’re spoken to in patronising tones, offered limited choices, or treated as though they lack the maturity or rights that other adults take for granted. Whether intentional or not, this behaviour is infantilising—and it undermines autonomy, self-esteem, and human dignity.

In disability support work, upholding adult status, agency, and decision-making rights is fundamental. Respecting someone’s autonomy doesn’t mean leaving them without help—it means offering support in a way that empowers, includes, and never diminishes.

Read More
sarah alcock sarah alcock

Respecting Support Worker Boundaries: A Two-Way Street in Disability Support

In the world of disability support, strong relationships between clients and support workers are built on more than just good communication—they’re built on mutual respect. While much emphasis is placed on person-centred care and client choice (rightfully so), there’s often less public conversation about what support workers need to feel safe, respected, and empowered in their role.

Read More
sarah alcock sarah alcock

“I’m Not Being Rude, I’m Self-Regulating”: Understanding Stimming and Why It Matters

In disability support settings, one of the most misunderstood behaviours is stimming—short for self-stimulatory behaviour. It might look like hand-flapping, rocking, pacing, finger-flicking, tapping, repeating words, or even making certain noises. To the untrained eye, stimming can seem disruptive, inappropriate, or even rude. But for many neurodivergent people—including those with autism, ADHD, sensory processing differences, or intellectual disability—stimming is a vital form of self-regulation.

Read More
sarah alcock sarah alcock

Fragile X Syndrome: Understanding the Condition and Offering Support

Fragile X syndrome is a genetic condition that affects intellectual development, behaviour, and physical features. It is the most common inherited cause of intellectual disability, and it impacts both males and females, although males are often more severely affected. The condition is caused by a mutation in the FMR1 gene on the X chromosome, which disrupts the production of a protein needed for brain development.

For families and support workers, understanding Fragile X syndrome means recognising its wide-ranging effects on learning, communication, and daily functioning. With the right supports in place, people with Fragile X can be empowered to build skills, connect with others, and participate fully in their communities.

Read More
sarah alcock sarah alcock

Living with Rett Syndrome: Understanding, Supporting, and Including

Rett syndrome is a rare neurological condition that primarily affects girls and is most often caused by a mutation in the MECP2 gene. Children with Rett syndrome typically develop normally in their first year, before gradually losing previously acquired skills such as speech, purposeful hand use, and coordination.

As the condition progresses, it can affect nearly every aspect of a person’s daily life—from walking and eating to breathing and communicating. Though the challenges are significant, supportive care and inclusive attitudes can help individuals with Rett syndrome live meaningful, connected lives.

Read More
sarah alcock sarah alcock

Enhancing Communication: A Guide to Augmentative and Alternative Communication (AAC) Tools

Effective communication is at the heart of fostering independence and social inclusion for individuals with speech or language challenges. Augmentative and Alternative Communication (AAC) tools provide a range of options that empower users to express themselves clearly. This guide explores the various types of AAC tools and offers advice for selecting and integrating them into daily life.

Read More
sarah alcock sarah alcock

Creating a Sensory-Friendly Home on a Budget: Tips for Inclusive Modifications

Designing a sensory-friendly home does not have to be an expensive or overwhelming project. With careful planning and a focus on cost-effective solutions, you can create an environment that meets the unique sensory needs of your loved ones. Start by understanding the specific sensory triggers that affect your family member—whether it’s harsh lighting, unpredictable sounds, or textures that feel uncomfortable. By observing daily routines and noting what works well and what causes distress, you can begin to make thoughtful adjustments.

Read More
sarah alcock sarah alcock

Angelman Syndrome Unveiled: A Comprehensive Guide to Management and Support

Angelman syndrome is a rare genetic condition that affects the nervous system, typically leading to challenges with movement, speech, and behaviour. Despite these difficulties, children and adults with Angelman syndrome are often known for their bright, happy demeanour and frequent laughter. Learning about this syndrome can help families and carers provide the support needed to maximise a person’s quality of life.

Read More
sarah alcock sarah alcock

Adapting Holidays and Celebrations to Be Inclusive for All Children

Holidays and celebrations are joyful occasions, but they can also present challenges for children with disabilities. Loud noises, crowded spaces, and unfamiliar routines may cause stress or anxiety. Adapting events to be more inclusive ensures that every child, regardless of ability, can participate and enjoy the festivities. With a little planning, you can create celebrations that are fun, engaging, and accessible for everyone.

Read More