Prader-Willi syndrome (PWS) is a rare and complex genetic condition that affects multiple aspects of development and daily functioning. It’s caused by the absence or malfunction of specific genes on chromosome 15 and is usually diagnosed in early childhood.

The condition is most widely recognised for causing persistent hunger and difficulty regulating appetite, but it also involves challenges with muscle tone, cognitive development, behaviour, and hormone production. With early intervention, structured supports, and a focus on autonomy, people with Prader-Willi syndrome can lead fulfilling and connected lives.